Discussions By Condition: Arm Conditions

Love to talk to others about TOS

Posted In: Arm Conditions 10 Replies
  • Posted By: Anonymous
  • August 15, 2006
  • 00:58 PM

It looks like I am the only one here. Love to talk about TOS and brachial problems. Any takers?

I am a Texas Gal.

Ellie :)

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10 Replies:

  • I just found this site too. I was on another site as a viewer but it went down a week after and has not come back yet. I have been misdiagnosed as having rotator problems but a chiroprator diagnosed me with this. I was sent for EMG's and they were positive for a Brachial problem near the C8 area. Hoe bout you?
    Anonymous 42789 Replies
    • August 15, 2006
    • 03:45 PM
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  • i replied, but it posted another "thread".
    Anonymous 42789 Replies
    • August 19, 2006
    • 04:34 AM
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  • just found site as well- recently diagnosed with tos. Have had for years. need more information on condition. have tremendus pain in both shoulders and elbows. never here anything about the elbows. any help would be great. can not do anything i love in life anymore. only 39. need to get fixed soon, haven't slept well in 2 yrs. just starting physical therapy for tos today.
    Anonymous 42789 Replies
    • August 31, 2006
    • 00:49 AM
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  • Just a guess on the elbow issue and I will use my case as an example...The TOS injury produces symptoms at the elbow and wrist which are similar to Ulnar nerve entrapment and Carpal Tunnel. As a result, I have pain at the elbow along with the numbness and tingling into the fingers. The EMG/NCV indicates however that there may be two issues going on, that being TOS and Ulnar Nerve Entrapment sometimes referred to as Double Crush Syndrome. TOS is definitely unique.
    Anonymous 42789 Replies
    • August 31, 2006
    • 02:24 AM
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  • thanks for info. double crush syndrome you say? never heard of it. never had any kind of accident, just developed rather quickly over time. How do you test for this, or confirm it? Would kill for a good nights sleep!
    Anonymous 42789 Replies
    • September 3, 2006
    • 00:05 AM
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  • EDS315 - A nerve conduction (NCV)Test and EMG confirmed the nerve entrapment and brachial plexus compromise which, combined with everything else, led to the diagnosis of Double Crush Syndrome. I had 4 NCV's and EMG's, and it was the last one, which was done under stress that confirmed everything.
    Anonymous 42789 Replies
    • September 4, 2006
    • 04:05 AM
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  • I am a 41 years old and about 7 years ago I started having pain in my left bicept that you would radiate down my entire arm. The pain would come and go and over a period of about a year it became constant. After the first year I started having pain in my right arm and it also is constant. The pain is a throbbing, aching, deep muscle pain that radiates down the arm. I have been to many doctors and even have been to the Mayo Clinic trying to get answers on what the cause to this could possibly be.They told me is was NOT thoracic Outlet syndrome, but they couldn't tell me what it was. I have had the following surgeries: They rerouted the Ulnar Nerve in my left arm that didn't relieve any pain. I traveled to Micro-Spine in High Florida to have Surgery on my spine where they releived pressure in the c4, c5 are of the spinal cord. This also did nothing to relive any of the pain. I recently had a Spinal stimulator put in my lower back with the stimilation going to each one of my arms. This has helped some but the pain is still overwhelming. I have been on many medications, morphine, oxycotin and many more hard narcotic drugs and the only drug that seems to have any affect is Ultram. It dulls the pain in my arms a little and with the spinal stimulator it makes life at least bearable. I believe we have tried everything and the Doctors don't know what else to do. Does anybody have any thoughts on what this could be?I would appreciate your input..
    robinson1011 6 Replies
    • February 2, 2007
    • 06:09 PM
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  • HI there having read your post it was like it was me talking, I have just been to the doctors and am having blood tests to rule out thyroid problems! I too have this dull gnawing ache in my left arm that feels like its going right through to the bone. I am quite worried as i have read stuff about bone cancer etc...and the pain is getting to be severe at times, and then normal painkillers dont do anything to even touch the pain. I hope you have now got it sorted and would be interested to know what happened to you. take care
    little8571 1 Replies
    • November 21, 2007
    • 10:54 AM
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  • I had TOS also. Mine ended up being compressed in the pectoralis minor space. You can learn alot at the new thoracic outlet syndrome website & forum. google.... atosa.org. This is not an easy illness to diagnose. Most people go 1 year or more before getting a diagnosis. There are only a few TOS specialists in the United States and worldwide.
    Anonymous 42789 Replies
    • November 25, 2007
    • 10:47 PM
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  • have any of you heard of elevations in blood pressure in chronic TOS due to the compression of the vagal nerve. incase you are not pruvy to the vagal nerve situation - it is a cranial nerve that passes through the medial scalenes and anterior scalenes (which are major components of TOS) on its way to innervating the diaphragm, heart, GI, and other anatomical structure. it plays a major role in heart rate and BP. well i have had severe TOS for the last couple of years and about a year ago my BP has gotten pretty high at times, just curious.-Thanks ahead of time
    Anonymous 42789 Replies
    • December 21, 2007
    • 05:35 PM
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