Discussions By Condition: Allergies

Many Tests & Doctors.. But No Answers!

Posted In: Allergies 8 Replies
  • Posted By: sonicbmx
  • January 19, 2007
  • 11:19 AM

i am a 37 year old male cyclist/athlete for 26 yrs. i don't smoke, drink coffee or soda and have never been on meds. i've had diarrhea since April 2006. at first my stools were loose (in particles) for wks, now they're formed but soft (thanks to supplements from my Holistic Dr), but it looks unhealthy. my stomach hurts often in the upper left quadrant at rib cage (like a broom handle poking me). my stomach burns at times and feels like it contains a thick, oozing liquid. i don't think my body is processing food correctly. i am sometimes weak/fatigue and have trouble sleeping. its been a roller coaster ride with symptoms.. things come and go. things are not improving.. they seem to be more apparent and constant.

my GI Dr put me on Pentasa (20Dec06) to treat as if I had Crohn's. there were no changes after 27 days so i stopped taking it. Here's an overview of the last 9 months or so (testing began in Sep06):

doctors: GP, 2 GI, Infectious Disease, Endocrinologist, Allergist, Neurologist. i'm seeing a GI Dr at Cedars Sinai on 20Feb.

tests: multiple blood & stool, upper GI series, ct scan, endoscopy, colonoscopy, capsule endoscopy, hydrogen-methane breath test. i'm having a myography 29Jan. all tests were normal including (h.pylori, celiac, c.diff, etc). biopsies negative on 5 small ulcers they think they're from NSAIDS (altho i had very few since Apr06, and i had MANY in Nov05 for broken foot).

meds: Pentasa 500mg for 27 days (did nothing). i took Prilosec during the day for 3 wks and Zantac at night for 4 wks in DEC/JAN (did nothing). 1 tab of Effexor (37.5).. multiple side effects within 1 hr, stopped taking.

recent surgery: broken foot Nov05, attempted removal of screw in foot Jul06, shoulder Oct06.

i'm at the end of my rope and the doctors are telling me it's "ALL IN MY HEAD" and they want to treat me for depression (altho i don't show signs). i said what the ***l.. and the Neuro Dr gave Effexor (37.5mg). i had a reaction in the first hour and multiple side effects for the next 72 hrs! 1 tab is all it took for me to realize antidepressant medication wasn't for me. but this is what the doctors had been talking me into for weeks.. i caved b/c i was willing to try anything since tests were coming back normal and these doctors were no longer taking me serious. where should i go from here? PLEASE RESPOND if you have any ideas, suggestions or comments, thanks!

i'm going to post this in the Gastro and Allergy/Immune sections as well..

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8 Replies:

  • :) Hello There; wish i could say same, about the vices. There is an over looked herb, perhaps your familiar with the name; Turmeric, cost is but a few pennys a day. I'm going to give you a web site where you can find it; then you can do as you like. http://www.omorganics.com/tumeric_article.htm A person can take all the medications in the world, but there is no other that does what turmeric does. Enjoy! As Always, In His Service.;)
    hogndog 426 Replies
    • January 19, 2007
    • 02:12 PM
    • 0
    Flag this Response
  • i just bought some Tumeric and will give that a test drive until it's gone. I figure i have nothing to lose.. especially at $8 pound. i'll certainly get back to everyone if i see any changes whatsoever.thanks for responding.. keep them coming folks!
    Anonymous 42,789 Replies
    • January 20, 2007
    • 04:01 AM
    • 0
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  • Try taking wheat out of your diet. Even though your celiac test came back negative, that happens to 30% of people who do have celiac disease, so it might be worth a shot. No meds involved too, which is good.
    Anonymous 42,789 Replies Flag this Response
  • I'd try an elimination diet. it may be that you are "intolerant" to a few particular foods. A naturopath is a good place to start for this as well, having either vega testing or agglutination testing done to screen for most food types. Althought the foods that most commonly end up being a problem are wheat (& wheat gluten), dairy and yeast. I agree with the previous reply that eliminating gluten would be a good start.Good luck!
    Anonymous 42,789 Replies Flag this Response
  • Hi,I also agree to stay clear of wheat,dairy,yeast,also i have a problem with oats too.I too have that pain you described under left ribcage,its very tender to touch aswel,i have had this now for 21yrs,i am 35 now,tests 10 yrs ago the same as yours,am now having a ct scan as i have a lump that floats under my ribcage(they say its not a hernia)tests will probably come back normal too,yes it makes you feel so desperate,my weight plumeted to 5stone when all this started and docs were no help.Anyway saw a nutrtionist 9 yrs ago,she said she thought i had systemic candida,from having lots of antibiotics as a child,who knows but its worth a go,it is very hard but you have to stick to a NO SUGAR,SWEETNERS,STARCHY FOODS,YEASTY FOODS,VINEGAR CONTAINING FOODS THE LIST REALLY DOES GO ON.Consult an alternative doc that can help,the thing is there are NO tests that really show candida as we all have it,it just goes a little crazy in some of us,due to certain meds e.g steroids,antidepressants it thrives on these,also stress,anyway i could go on forever please do a search on systemic candida,there is a good site about a doctor in cyprus who has had it also,and he swears he is rid of it also chronic fatigue,it goes into depth about all the symptoms yet doctors are not the ones to advise on this as the think we are crazy.Type in Davince natural health centre,it is in larnaca cyprus,have a look,good luck hope you find help...
    Anonymous 42,789 Replies Flag this Response
  • Have you tried acupuncture or NAET? These are two very effective treatments for GI disorders. Best wishesDOM
    acuann 3,080 Replies Flag this Response
  • Hi, I was browsing and read your post and it cought my attention...especially the broom stick part. I am not a Dr. and maybe one has already offered insight to my idea...sorry if i repeat any info. I had similar symptoms like you and it turned out that my gallbladder was diseased...and that diagnosis took me screaming at the top of my lungs in the ER, attached to a useless IV for heartburn, and making my way to the hall/lobby telling anyone who would listen that this was not a Pepsid "f______" moment! I had been given Prilosec (sp?) for an entire year already with no remedy, an IV of something similar wasn't going to do it. Finally, after hours of no one listening as the pain got worse and worse, the took an xray....the next thing I knew, I was admitted to emergency surgery to have my gallbladder removed...I think the bile was leaking in my chest and full iof disease/stones. They never thought a woman my age in my health state, never pregnant would have this problem. The year before that I fought with similar symptoms you've described, that's why I wanted to share this story. I hope you get the situation resolved or better yet, have already. Sarah
    Anonymous 42,789 Replies
    • January 2, 2008
    • 10:37 PM
    • 0
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  • thanks for responding but i'm well on my way to recovery. Lyme (Borrelia) & Babesia were the culprits.all of the juicy details can be found at another link on this forum: http://forums.wrongdiagnosis.com/showthread.php?t=16210--sonicbmxPlease Sign The Lyme & Tick-Borne Disease Petition andThe LDA vs IDSA Guidelines Petitionit takes less than a minute.. tell a friend, thanks.http://www.petitiononline.com/lyme/http://www.lymediseaseassociation.org/referral/Petitions/Petition.php?id=1
    sonicbmx 44 Replies
    • January 8, 2008
    • 01:25 AM
    • 0
    Flag this Response
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