Discussions By Condition: Allergies

Hives

Posted In: Allergies 5 Replies
  • Posted By: MelodiousFlutist
  • March 13, 2009
  • 01:54 AM

Hi all, I am starting to become very very frustrated. I went to my allergist, and have no allergies (except being very mildly allergic to pollen and trees, which are not a concern in winter). I was tested for every possible allergy, and therefore she could not find a reason for me to be breaking out in hives almost every day. I have even had to go to the hospital on more then one occasion for them. I was prescribed prednisone on more then one occasion, which only helped temporarily.

I then went to a rheumatologist, and had more blood work then I every could of imagined having (over 25 viles, which led to over 10 pages of results), and he does not think I have an autoimmune disease. At first they thought I might have lupus, sarcoidosis, or autoimmunethryoid disease. However, just to be on the safe side, he recommend that I am go to another rheumatologist for a second oppinion, which I am doing in April (it was the first appointment available...).

Now other random tests have showed that my thymus is slightly enlarged (which I am going to an ENT for to check it out, although the rheumatologist said it is most likely nothing, but to go to be safe), my thyroid is borderline for being on the unactive side, and my estrogen is low (which is not normal since I am on the pill), and I tested positive on the low side for having something to do with blood clotting (which is most likely due to the pill, but I am going to an ob/gyn end of the month to check this out). I also have a very low immune system, and have had mono in February of 2007.

So basically I am back to square one, and have a lot of tests with nothing to show for it. I am becoming VERY frusturated. Do any of you have a similar experience. Or have something that a symptom is hives but it is not allegry or autoimmune related?

Thanks in advance,
Jennifer

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5 Replies:

  • I'm not sure if I am allergic to this, or at least I don't think I am. I read everything you suggested, and I don't get symptoms like most of them. For example, when I go by a microwave or use a cell phone nothing happens, and my eyes have never swollen shut. There were other things to. Thank you though, and I will mention it next time I go to the doctor, you never know.
    MelodiousFlutist 1 Replies Flag this Response
  • Hi all, I am starting to become very very frustrated. I went to my allergist, and have no allergies (except being very mildly allergic to pollen and trees, which are not a concern in winter). I was tested for every possible allergy, and therefore she could not find a reason for me to be breaking out in hives almost every day. I have even had to go to the hospital on more then one occasion for them. I was prescribed prednisone on more then one occasion, which only helped temporarily. I then went to a rheumatologist, and had more blood work then I every could of imagined having (over 25 viles, which led to over 10 pages of results), and he does not think I have an autoimmune disease. At first they thought I might have lupus, sarcoidosis, or autoimmunethryoid disease. However, just to be on the safe side, he recommend that I am go to another rheumatologist for a second oppinion, which I am doing in April (it was the first appointment available...). Now other random tests have showed that my thymus is slightly enlarged (which I am going to an ENT for to check it out, although the rheumatologist said it is most likely nothing, but to go to be safe), my thyroid is borderline for being on the unactive side, and my estrogen is low (which is not normal since I am on the pill), and I tested positive on the low side for having something to do with blood clotting (which is most likely due to the pill, but I am going to an ob/gyn end of the month to check this out). I also have a very low immune system, and have had mono in February of 2007. So basically I am back to square one, and have a lot of tests with nothing to show for it. I am becoming VERY frusturated. Do any of you have a similar experience. Or have something that a symptom is hives but it is not allegry or autoimmune related? Thanks in advance,Jennifer I have been getting hives and nerve symptoms for almost 2 years. I know how you feel. I am hoping its Lupus, so I can just get a diagnosis. It is so frustrating and scary to be having something going on and not getting any answers from doctors. You may want to switch to a more natural detergent that is unscented, softener as well. And you may want to wash your clothes and sheets, etc everyday just in case you have a parasite. Good luck to you.
    jessbestrong 18 Replies Flag this Response
  • I have been getting hives and nerve symptoms for almost 2 years. I know how you feel. I am hoping its Lupus, so I can just get a diagnosis. It is so frustrating and scary to be having something going on and not getting any answers from doctors. You may want to switch to a more natural detergent that is unscented, softener as well. And you may want to wash your clothes and sheets, etc everyday just in case you have a parasite. Good luck to you.I started getting massive hives about a month ago--took pictures every time-my eye swelled, my lips swelled--I found an e-book online about a cure for hives and it worked! It had to do with my ph. I got ph strips and saw that I was totally acid in my system. So I drank a tea twice a day, cut soda, increased water --my ph is now normal and hives are gone! The tea is 1/2 tsp if aluminum free baking soda (ordered online), two tablespoons of organic cider vinegar in warm water! Yuck--but put honey in it and drink it! Good luck--
    Anonymous 42789 Replies
    • November 9, 2010
    • 07:40 PM
    • 0
    Flag this Response
  • Hi all, I am starting to become very very frustrated. I went to my allergist, and have no allergies (except being very mildly allergic to pollen and trees, which are not a concern in winter). I was tested for every possible allergy, and therefore she could not find a reason for me to be breaking out in hives almost every day. I have even had to go to the hospital on more then one occasion for them. I was prescribed prednisone on more then one occasion, which only helped temporarily.I then went to a rheumatologist, and had more blood work then I every could of imagined having (over 25 viles, which led to over 10 pages of results), and he does not think I have an autoimmune disease. At first they thought I might have lupus, sarcoidosis, or autoimmunethryoid disease. However, just to be on the safe side, he recommend that I am go to another rheumatologist for a second oppinion, which I am doing in April (it was the first appointment available...).Now other random tests have showed that my thymus is slightly enlarged (which I am going to an ENT for to check it out, although the rheumatologist said it is most likely nothing, but to go to be safe), my thyroid is borderline for being on the unactive side, and my estrogen is low (which is not normal since I am on the pill), and I tested positive on the low side for having something to do with blood clotting (which is most likely due to the pill, but I am going to an ob/gyn end of the month to check this out). I also have a very low immune system, and have had mono in February of 2007.So basically I am back to square one, and have a lot of tests with nothing to show for it. I am becoming VERY frusturated. Do any of you have a similar experience. Or have something that a symptom is hives but it is not allegry or autoimmune related?Thanks in advance,JenniferEven though all of your tests came back negative for the "typical" autoimmune disorders, it may still be autoimmune in nature. I also had the battery of tests for them (the ANA panel), but my allergist sent off for a specialized test that found that mine IS autoimmune in nature. I have borderline low thyroid function, an asymmetrical thyroid gland (although they don't think that has anything to do with the thyroid function-how, I don't quite understand?), low estrogen (although they attribute that to having a partial hysterectomy), no food allergies, only environmental allergies are to grass/some trees/some mold (which would all be respiratory symptoms, not skin), and have had mono twice in the past (although it was long ago). The only difference is that my white cell count is usually higher than normal (usually runs about 12,000, the "high" end of normal is about 10,000). The blood test that I had done was for anti-FcE receptor autoantibodies, and it was done at National Jewish Laboratory in Colorado. My allergist said my numbers were "off the chart" and I guess the lab ran the test twice because they thought the first one was wrong. Unfortunately, my hives are EXTREMELY resistant to every medication I've taken (even massive doses of prednisone didn't make a difference) so I am now on an immunosuppressant to try and get some relief. If your doctor doesn't want to send for that test, I think there is another test that can be done, (the ASST) but my allergist couldn't do it on me because I also have dermatographia and that one could give a "false positive" because of it, regardless of the actual result.
    Anonymous 42789 Replies
    • November 23, 2010
    • 05:11 PM
    • 0
    Flag this Response
  • Even though all of your tests came back negative for the "typical" autoimmune disorders, it may still be autoimmune in nature. I also had the battery of tests for them (the ANA panel), but my allergist sent off for a specialized test that found that mine IS autoimmune in nature. I have borderline low thyroid function, an asymmetrical thyroid gland (although they don't think that has anything to do with the thyroid function-how, I don't quite understand?), low estrogen (although they attribute that to having a partial hysterectomy), no food allergies, only environmental allergies are to grass/some trees/some mold (which would all be respiratory symptoms, not skin), and have had mono twice in the past (although it was long ago). The only difference is that my white cell count is usually higher than normal (usually runs about 12,000, the "high" end of normal is about 10,000). The blood test that I had done was for anti-FcE receptor autoantibodies, and it was done at National Jewish Laboratory in Colorado. My allergist said my numbers were "off the chart" and I guess the lab ran the test twice because they thought the first one was wrong. Unfortunately, my hives are EXTREMELY resistant to every medication I've taken (even massive doses of prednisone didn't make a difference) so I am now on an immunosuppressant to try and get some relief. If your doctor doesn't want to send for that test, I think there is another test that can be done, (the ASST) but my allergist couldn't do it on me because I also have dermatographia and that one could give a "false positive" because of it, regardless of the actual result.For this reason it's fundamental to understand the initial signs and symptoms of HIV. Knowing all the signs or symptoms and knowing the disease at an early point is very important for the reason that in that way the procedure can begin on the 1st point in time and the infection, while not treatable, could be kept manageable.http://www.hivsymptomsblog.com/hiv-symptoms-in-men/
    Anonymous 42789 Replies Flag this Response
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