Discussions By Condition: Allergies

chronic hives

Posted In: Allergies 314 Replies
  • Posted By: hoping
  • February 9, 2007
  • 04:51 AM

I have been suffering :( from chronic hives..now for 5 months. It first appeared when I was about to return home after a trip to AZ. I thought I had been bitten by a bug. The next day I was covered from head to toe.
The doctors put me on prednisone which suppressed the hives. Their hope was that the prednisone would kill it. Unfortunately, it did not..and after 4 months I weened myself off the prednisone because I was suffering from prednisone's bad side effects. There are many to list, but the ones specifically affecting me was joint pain and weight gain. I gained 31 lbs, I went from weighing 116 to 147. The doctors also said I shouldn't have been on prednisone for so long but they thought I was possbily
suffering from acute hives verses chronic hives :mad: .

To date, I have seen 4 dermatologists and 1 allergist. I've had various blood tests, food allergy test, stool tests, xray, cat scan, even a spinal tap (tested to see if meningitis- was suffering fever and headache --i believe because I was taking so many ***n drugs!) Along with the prednisone, I have taken hydroxzine, famvir, valtrex, doxepin, ranitidine, singulair, accolate, fexofenadine, dapsone, zyrtec, and now the latest colchicine. While I wason steroids, life was livable-I wasn't extremely itchy nor covered in hives. I had breakouts everyday while on the prednisone but they were not severe. It has now been a month since I have been of the prednisone. I'm covered head to toe, palms of hands, bottom of feet, face, etc...extremely itchy and uncomfortable. Nothing seems to be working..making this all go away. I spoke to some people (along with the doctors) and they have said it could last up to a year, or forever, or disappear as quickly as it came. I have never suffered from something
like this before! I did contact an acupunturist but he wasn't sure if acupuncture could help. He also said to stick it out with the drugs because the acunpuncture will be very costly for me..minimum of 12 -18 treatments $60 a piece along with the no guaranteed that it would help!!!

Hopefully, you can help me...

So my questions::(
Is there anything out there that I have not tried?
Has anyone had a similar case of this- chronic hives? and How long did it last for them?
Is there anything for relief of the itching that has worked???

Reply Flag this Discussion
  • Sorry for your illness but I live in the same world. My first bit of advise is to get tested for Valley Fever! This can become real bad if left untreated. Try the valleyfeversurvivor.com for some insite. Now get a chemical allergy test. Call T.R.U.E Test for chemicals. I recieved all the drugs you did and gained 30#'s on Doxepin. The short story is I'm allergic to many chemicals in the meds and the hive got better then worse. The name for it is MCS (Multi Chemical Senitiviity) The bad news is not much being done to help us. I too went to AZ and this has been a 3 years nightmare for me. I have been to Mayo Clinic and most docs just don't have any answers. Find a GREAT Enviormental doc. He or she will help. I can't find many people with our condition and it is very lonely but I can tell you that YOU need to be the doc. Once they confirm the allergy then it's time to get into the chemical world and it is like being in space. I would love to chat if you need someone to talk to. Please let me know how it's going. Lois
    loiskerr 29 Replies
    • February 9, 2007
    • 05:38 PM
    • 0
    Flag this Response
  • I have been suffering :( from chronic hives..now for 5 months. It first appeared when I was about to return home after a trip to AZ. I thought I had been bitten by a bug. The next day I was covered from head to toe.The doctors put me on prednisone which suppressed the hives. Their hope was that the prednisone would kill it. Unfortunately, it did not..and after 4 months I weened myself off the prednisone because I was suffering from prednisone's bad side effects. There are many to list, but the ones specifically affecting me was joint pain and weight gain. I gained 31 lbs, I went from weighing 116 to 147. The doctors also said I shouldn't have been on prednisone for so long but they thought I was possbilysuffering from acute hives verses chronic hives :mad: . To date, I have seen 4 dermatologists and 1 allergist. I've had various blood tests, food allergy test, stool tests, xray, cat scan, even a spinal tap (tested to see if meningitis- was suffering fever and headache --i believe because I was taking so many ***n drugs!) Along with the prednisone, I have taken hydroxzine, famvir, valtrex, doxepin, ranitidine, singulair, accolate, fexofenadine, dapsone, zyrtec, and now the latest colchicine. While I wason steroids, life was livable-I wasn't extremely itchy nor covered in hives. I had breakouts everyday while on the prednisone but they were not severe. It has now been a month since I have been of the prednisone. I'm covered head to toe, palms of hands, bottom of feet, face, etc...extremely itchy and uncomfortable. Nothing seems to be working..making this all go away. I spoke to some people (along with the doctors) and they have said it could last up to a year, or forever, or disappear as quickly as it came. I have never suffered from somethinglike this before! I did contact an acupunturist but he wasn't sure if acupuncture could help. He also said to stick it out with the drugs because the acunpuncture will be very costly for me..minimum of 12 -18 treatments $60 a piece along with the no guaranteed that it would help!!! Hopefully, you can help me... So my questions::( Is there anything out there that I have not tried?Has anyone had a similar case of this- chronic hives? and How long did it last for them?Is there anything for relief of the itching that has worked???So sorry, but you can't take prednisone like it was vitamins. Those doctors are more incompetent every day.To get rid of your hives you have to go on a diet. You have to stop eating all the crap that is triggering your hives. Also, you need to stop using harsh chemicals.You need to do elimination diet for a while.$60 per session is not expensive- taking prednisone and destroying your organs is.*Avoid all processed foods and drinks*avoid food additives*avoid caffeine and sugar*avoid milk and wheat* eat broccoli, leafy greens, some legumes, white rice.*avoid bad quality fats*take a multivitamin and extra vitamin CIt might be your laundry detergent, your bar of soap, non steroidal pain killers, or other drugs. You need to detox.It is a long process and it takes discipline.I have been there.Be well.
    Anonymous 42789 Replies
    • February 9, 2007
    • 05:56 PM
    • 0
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  • At what dosage of prednisone were you on?And for how long?Did it help while you were on it?And what happen after you got off?I've dealt with different dosages of prednisone and am curious and might have some input.:(
    AshleyHH 45 Replies
    • February 12, 2007
    • 01:51 AM
    • 0
    Flag this Response
  • Sorry for your illness but I live in the same world. My first bit of advise is to get tested for Valley Fever! This can become real bad if left untreated. Try the valleyfeversurvivor.com for some insite. Now get a chemical allergy test. Call T.R.U.E Test for chemicals. I recieved all the drugs you did and gained 30#'s on Doxepin. The short story is I'm allergic to many chemicals in the meds and the hive got better then worse. The name for it is MCS (Multi Chemical Senitiviity) The bad news is not much being done to help us. I too went to AZ and this has been a 3 years nightmare for me. I have been to Mayo Clinic and most docs just don't have any answers. Find a GREAT Enviormental doc. He or she will help. I can't find many people with our condition and it is very lonely but I can tell you that YOU need to be the doc. Once they confirm the allergy then it's time to get into the chemical world and it is like being in space. I would love to chat if you need someone to talk to. Please let me know how it's going. LoisLois, Thank you for your kind words. When this first appeared I was tested forcoccidiomycosis, the test came back negative. I've had tons of bloodwork done, not sure if any were a chemical allergy test. The prednisone was able to suppress the hives, but that couldn't be the solution. Three years..i can't even imagine. Through all the testing, the allergy has not been detected. The latest drug colchicine seems to be helping somewhat. The hives are still present but in a smaller amount. The itching is still present but not as constant as before. All and all, I'm simply continuing to be uncomfortable, itchy, and the staring eyes from others around me. Lois, thank you again!
    hoping 6 Replies
    • February 12, 2007
    • 03:20 AM
    • 0
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  • At what dosage of prednisone were you on?And for how long?Did it help while you were on it?And what happen after you got off? I've dealt with different dosages of prednisone and am curious and might have some input. :(I started with 60mg for 1.5-2 months..and then it was 50, 40, 30, 20, 10.I was on it for 4 months. The prednisone helped in supressing the hives.For the most part they were not visible and I wasn't constantly suffering from the itchiness. Therefore, it did help me but it also brought on the bad side effects...I gained 30 additional lbs, aches in my joints, hard time breathing. You have to wean yourself off of them slowly. When I got off of them, my face went back to normal. On them my face had become a puffy..known as "moon" face. Some of the weight has gone...but it's been a struggle. When I was on the prednisone, I was constantly hungry and nothing could satisfy my appetite..so I ate and ate. However, everyone is different I know of a girl that was also on it and she hadn't gained any weight. I hope that helps..
    hoping 6 Replies
    • February 12, 2007
    • 03:30 AM
    • 0
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  • While living in the South I got 2-3 milder blackfly bites on my upper cheeks while gardening. My face/cheeks start to get numb. Within eight hours my face is swollen and hot- even my head; my sinuses are pounding & I'm dizzy, and I'm feeling tightness in my chest, heart palpitations and general weakness. (which is a systemic reaction to this bite btw) :confused:My doctor prescribes 60 mg of prednisone for 3 days then reduces and off. I knew from past experiences that this was too low a dose. But I go this route for 1.5 months and I still have the inflammation. It was unbearable. I couldn't walk or talk or think. An Indian doctor finally prescribes more prednisone and says take it as you must. So I take a very high dose for JUST two days like I did in previous years and the inflammation subsides. :eek:But now my adrenal shut down from being on steroids for so long and it took me 9 months to taper off.:rolleyes:If you'd like to email me and it's ok to give my address, we could talk. ;)
    AshleyHH 45 Replies
    • February 12, 2007
    • 05:21 AM
    • 0
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  • I I wasn't on it long and it didn't help. Really nothing helps. My doc thinks it cotton and how they process it with chemicals. My hives are much worst in the winter when I were clothes. We are trying a nonmedical trial, no cotton tight on my body. The chemical testing I speak of is done on your back for 72 hours, I have learned alot from that. Lyme is something else to consider. You could of got a tick without knowing. My blood work came back yesterday all jacked with high white count and some other things. We will see what comes of that. My derm mixed a pound of Aquafor with some powder that I grease myself up with and that does stop me from tearing up my skin, but is a pain to use. I grease up twice a day and have to sit before getting dressed. But it helps. The name of the powder is Triamcinolone P/Aquaphilic Oinment. I hope this helps. Lois
    loiskerr 29 Replies
    • February 13, 2007
    • 04:00 PM
    • 0
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  • Depending on where you live, Tick born illnesses have many names, Valley fever may be one of them. Prednasone is the worse thing for Tick diseases, like Lyme. Check out www.lymenet.org for alot of help & info.
    Anonymous 42789 Replies
    • February 24, 2007
    • 01:19 PM
    • 0
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  • I was tested for lime disease, valley fever, and other bug diseases- everything was negative. I am currently taking colchicine. I was still having outbreaks. My dermatologist then also prescribed gastrocom.Gastrocom seems to be helping. I still have the hives. I am not covered all over. Life is managable and livable. As long as I take the gastrocomevery 4-6 hours, I will not have a massive outbreak. I personally, wish for a cure to simply make it all go away. So there isn't a need to takemedication to suppress it.
    hoping 6 Replies
    • February 27, 2007
    • 08:08 PM
    • 0
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  • I've been suffering from CU for over 6 years now. It started during the last semester of my senior year of college so I thought it was stress-related. Now 6 years later I have no idea what it is and neither do my doctors. I've had a myriad of tests done; I've been on doxepin, allegra, claritin, and zyrtec. They only work as long as I take them regular. If I miss a dose, within 30 min - 1 hour I'm covered in hives! Also, once an outbreak subsides, I feel very sleepy and even have some muscle aches. Anyone else ever experience this?? Any suggestions of specific tests I should ask my doctor to run? Thanks!
    Anonymous 42789 Replies
    • February 28, 2007
    • 01:34 AM
    • 0
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  • There is a new treatment to detect and eliminate allergies. It is called NAET.It works. It will do non invasive muscle test to figure out what's triggering the reactions.
    Anonymous 42789 Replies
    • February 28, 2007
    • 02:33 AM
    • 0
    Flag this Response
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  • I have been suffering from hives for about 5 months now. It has been rapidly getting worse. My body is covered with them every night, mostly on my back, stomach and groin area. Lately I have been waking up with them as well. In reading some of the other comments here I have to say, I think we really are out of luck. The problem with this disease or whatever you want to call it is that there is too much speculation about what does and doesn't cause it. I have a very healthy diet, am very active (work out at the gym), and am generally a relaxed person. I have tried changing soaps, laundry detergents and everything in between and no results. Just a worsening of symptoms. I thought it was my old apartment for awhile maybe mold....I have since moved into a brand new, never lived in apartment and still am getting hives. The last time I went to my doctor I told him about them and he was no help because of course I didn't have any on me at the time. And he said without seeing them or looking at a picture of them he didn't know what the rash could be. I had a full set of blood work tests and everything came back perfect. I am also never sick which I think rules out some type of virus. I don't know what could be causing my hives. They came out of no where and seem to be getting worse. What I do know is that I can't waste my time monitoring everything I put into my mouth, wash with and wear. I started to do that and was going in circles. I think it's sad that it's 2007, and there is no known cure for hives or at the very least an effective way of treating them. If anyone has a suggestion I haven't tried, I am all ears.
    Brodie 2 Replies Flag this Response
  • Hello I can fully understand what you are going through. I started getting hives after the birth of my second child in 2001 an up until recently was getting them of different severity EVERY DAY.I tried elimination diets, skin tests, every antihistamine on the market alternative therapies to no avail. It got to the stage where I was getting no relief from the anti histamines. I went to about 4 different GP's, 3 naturopaths and the allergy specialist twice and basically they told me to let them take their course and keep a diary of what I eat. While I was pregnant with my third child they did dissapear for a while but when I went on the antibiotics after my caesar, as a precautionary measure, they came back. I start to think that it was a stomach, digestive problem and started taking bacteria tablets such as Inner Health Plus and yoghurt etc. I did notice a difference in the severity of it but still didn't stop them. I told our local pharmacist about my problem and he asked me if I could wait a few weeks so he could do some research. He then told me to try taking anti acid tablets such as Mylanta or Zantax etc. I started taking Mylanta and since then have had no hives. So in my case it must have something to do with the acid in my bile so I am going back to the GP to talk to him again. Maybe it is my liver or gall bladder.Hope this helps..j_jshannon@hotmail.com if you would like to contact me.
    Anonymous 42789 Replies Flag this Response
  • If you take Gastocom and it helps--then it definitely is food allergy! That's what Gastrocom is for. Do an elimination of one food for a week,and then start eating it again. If you have a reaction to that food after a week off of it ,then you know that is one food to stop eating. If all your symptoms goes away then you have found your answer. The next week pick another food and stop eating it for a week. Do that until you have covered your whole diet or until the hives stop. Start with any new or different food that you're eating. I was allergic to Mulberries and we had a tree outside our door. I was eating them and had a fan in the window drawing that scent in also. I stopped eating those and the hives left,moved fan to another window.When you clean or do laundry, use all unscented products. Use a mask to clean and gloves.I use "Arm and Hammer for Sensitive Skin" to wash clothes. Use unscented fabric softener also.There are many brands now that is unscented. Use unscented bath and shampoo products too. All this helps and when you are well, you can try some of the scented things and see if it bothers you.Hope this helps but I've been there done that LOLHugs Shirley:)
    Shirley M 21 Replies Flag this Response
  • have you had your home tested? for molds? etc??
    Anonymous 42789 Replies Flag this Response
  • have you had your home tested? for molds? etc??No but I have moved recently into a brand new apartment, and am still getting hives....I know its not mold
    Brodie 2 Replies Flag this Response
  • There is a new treatment to detect and eliminate allergies. It is called NAET.It works. It will do non invasive muscle test to figure out what's triggering the reactions.I am trying this treatment this week. Not for hives, but I would think it would be very helpful for this too. Visit www.naet.com for info on this - it sounds amazing and I can't wait for my appt. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • When the mold spores got into my clothes & bed linens, I couldn't wash them out or kill them with clorox (doesn't work), I had to trash them. And then my symptoms subsided. :oHopefully my bad experiences will help someone else in a similar situation.
    AshleyHH 45 Replies Flag this Response
  • Signs and symptoms of histamine imbalancehigh histamineSneeze in bright sunlightFeel you were a shy and over sensitive teenagerCry, salivate and feel nauseous easilyHear our pulse in your head on the pillow at nightGet referred itching when you scratch your legHave frequent stomach aches, muscle cramps and back painsHave any easy orgasm with sexHave regular headaches and seasonal allergiesHave inner tension and occasional depressionHave abnormal fears, compulsions, and ritualsThink you are a light sleeperBurns up food rapidlySometimes have suicidal thoughtsTolerate a lot of alcohol and other downersHave little body hair and lean buildHave long fingers and toes
    ekeeker 3 Replies Flag this Response
  • Hi I've had hives for a little over two months, did blood tests, biopsy, urine test...been on prednisone, zantax, rinitadine....benadryl was the worst.I went to see an acupuncturist and he's got me on the right path, Hives are going away. You need to change your DIET...DRASTICALLY. NO spices, NO coffee, NO alcohol,... Eat leafy greens , lean protein. Drink half your weight in ounces of water per day. This all stems from an overloaded liver working overtime to clean out all the toxins in our food, detergents on our skin etc. Try doing a liver cleanse...all skin disorders stem from a liver not functioning properly. I was in terrible shape and I'm so glad that at my witts end decide to go see this amazing acupuncturist. What we ingest is reflected in our skin, very simple, but western doctors are blinded by it's simplicity. Good luck to everyone.
    Anonymous 42789 Replies Flag this Response
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